Little Miss Dinky Kt's Video Diary & Cherylee Houston (Corrie's Izzy)

Hey up peeps!

I hope you are all keeping well and having fun in whatever it is you're doing.

After a moment of watching other people with Ehlers-Danlos Syndrome on videos uploaded onto YouTube, a thought popped into my head... maybe I could upload some videos about how I live with the condition? I needed time to sleep on it and think it through before I do anything, so therefore I went to bed.

The next day, I was still thinking about it but I was suprised at myself by feeling like positive about making/uploading videos. I was anxious and worrying about what people thought of the idea: what if people didn't like it or feel comfortable in watching me talking about the condition so openly.

Anyway, later that day I found myself writing down notes with some of the things I wanted to say and filmed myself. Although I did do some research first just to make sure the facts were correct. When I watched the video back, I found out a few things about myself which I wasn't necessarily aware of beforehand but this is a good way to discover these things, don't you think?

I wanted to edit and make it as good as I could before uploading it online. As my friend said "You're going to be presenting yourself to the world and saying "Hi, I'm Katie and I have Ehlers Danlos Syndrome." I didn't really think of this to be honest, it's kind of frightening but exciting that the world can see how I am and being strong at doing this project.

So on YouTube there are some video diaries that I've uploaded, I want to make awareness about Ehlers-Danlos Syndrome and what it is like to live with. I never see any promotion in helping the EDS charity or just basically about the condition itself. Only recently, there is a character on the Coronation Street (Cherylee Houston who plays Izzy) who also suffers from the same condition but still they haven't gone into too much detail about it yet although I keep hoping that they will one day soon).

Cherylee Houston

http://youtu.be/fn-_cAQ4lGs << this is a link to my first diary entry. Have a look and see what you think. Let me know your thoughts and don't hestitate in asking questions etc.

Or go to: My video diary-EDS ( account username is: KatieMarieWe )

Anyhow, this is just what I wanted to share with you. I'll be with you soon, keep smiling! :-)

Hallo, I'm back!

Hiya everyone!

How are you all doing? Lately I've been on a bit of a journey to find myself once again. After having all the wedding/preparations, Take That concert and trying to get my shoulder back right again, the strain of it all left me feeling somewhat tired and lost in the world.

You kind of forget about yourself when busy doing things and having plenty of things to look forward to then you realise that there's nothing to keep you on the ground. That's not just a negative thing but also a slight positive in the way of getting to grips with reality again. I suppose if you think of it this way, like if you're a pop star being on tour for several months and when it's finished, that is the end. Like a sudden drop from the high-life, it can be a little unsettling.

I'm still having trouble with my shoulder but starting hydrotherapy in about three weeks time so hopefully that will ease it. I used to go to hydro every week back when I was in school. I gained so much benefit from it so have missed it since. (Hydrotherapy is a pool of heated water that is used for pain relief and treating illnesses.)

I've been doing lots of research for my assignment. Managed to get to the library and collected lots of printouts and photocopying which will hopefully help me with it. I decided to write an article about the gangs and youth dissillusionment which links in with riots. It's a good subject but proving to be quite a heavy and never-ending topic. I will let you know how I get on with it.

Well I've got to go now but you'll see me soon. Keep smiling! xx